International Forum: The Future of Outcome Measurement

Date: April 11, 2022

All times are in Central Daylight Savings Time - U.S.

Time

Details

9:30 AM

Light breakfast for in-person participants

10:00 AM

Introductory remarks

Anjali J. Forber-Pratt, Director, National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR)

Amanda Reichard and Shawn Terrell, Administration for Community Living (ACL)

Amy Hewitt, Director of the Institute on Community Integration, University of Minnesota

Presenters

Julie Beadle-Brown of the University of Kent - the United Kingdom & Jan Šiška - Charles University, Czech Republic (currently a Fulbright-Masaryk scholar at the Institute on Community Integration, University of Minnesota): Review of Innovative Frameworks to Inform Outcome-based Measures of Service Quality in Europe

Roger Stancliffe, Professor Emeritus, University of Sydney (currently at the Institute on Community Integration, University of Minnesota): The Disability and Wellbeing Monitoring Framework

Brian Abery & Renáta Tichá, Co-directors Research & Training Center on HCBS Outcome Measurement at the Institute on Community Integration, University of Minnesota: Person-Centered Longitudinal Approach to Outcome Measurement

Allen Heinemann & Anne Deutsch, RRTC on Home- and Community-Based Services, from the Shirley Ryan AbilityLab, in Chicago: (1) Competencies in Home and Community-Based Services for Person-Centered Supports, (2) Measuring Quality: Turning Data into Quality Measures

11:25 AM

Panelists/discussants

Dorothy Hiersteiner &  Stephanie Giordano - Human Resources Research Institute

Shawn Terrell - Administration for Community Living

Carli Friedman - Council on Quality and Leadership

Christine Linehan - University College Dublin (Ireland)

Anne Rosken - University of St. Gallen (Germany)

Johannes Schaedler - University of Siegen (Germany)

12:15 PM

Discussion – questions from the audience

12:40 PM

Way forward: Action steps

1:00 PM

Adjourn (lunch for participants in person)

We Need Your Help! | Research Study Participants who know someone with a disability Wanted for Interviews

We are testing measures to improve person centered Home and Community-Based Services outcomes for people with disabilities

Getting services at home or in the community is important for people with disabilities. To make those services better, we need to know if and how the services are working. We are testing measures that include questions about how well Home and Community-Based Services (HCBS) are helping people live the lives they want. We need your help to make sure the measures provide valuable information.

In this research study, we will meet with you over video conference. We will talk with you and ask questions about the experiences of someone you know with a disability and determine how well you believe you can answer questions about that person. We may record the interview.

To take part, you must:

  • Be at least 18 years old.
  • Know someone well who has a disability and receives services or supports for the disability (Physical, Mental health, Intellectual and developmental, Age-related, or Acquired Brain injury/TBI)
  • Provide consent.
  • Be willing to take part in a 60-90 minute interview(s).

Everyone we interview will get a $20 gift card per interview.

If you have any questions please contact: Matt Roberts at rtcom@umn.edu or 612-624-1489.

This research study is overseen by co-directors of the Research and Training Center on HCBS Outcome Measurement, Dr. Brian Abery (abery001@umn.edu) and Dr. Renáta Tichá (tich0018@umn.edu) at the University of Minnesota’s Institute on Community Integration.

Research Study of New HCBS Outcome Measures Launched-Participants Needed!

Getting services at home or in the community is important for people with disabilities. Providers strive to provide the best services possible to the people they serve. To improve services, we need to know how well they are working for the people who receive them. The Research and Training Center on HCBS Outcome Measurement (RTC/OM) at the Institute on Community Integration has developed measures that include questions about how well Home and Community-Based Services (HCBS) are helping people with a variety of disabilities live the lives they want. We need the help of people with disabilities to make sure the measures provide valuable information and their results can be used to improve services. In this research study, interviewers will meet over videoconference (Zoom) with people with disabilities or in person, to ask questions about their services and important areas of their lives (e.g., social connectedness; meaningful activities). Each person taking part will be interviewed at three separate times over a year period. Everyone interviewed will receive a $10 gift card. We are recruiting participants for interviews right now!

To take part, a person must:

  • Be 18 years of age or older.
  • Have a disability and receive services or supports for their disability.
  • Provide consent or assent (if not own legal guardian) for participation in the research study.
  • Be willing to take part in a 60-90 minute interview.

If you think some of the people you support might be interested or have questions about this work, please contact: Matt Roberts (rtcom@umn.edu)

This research study is overseen by co-directors of the Research and Training Center on HCBS Outcome Measurement, Dr. Brian Abery (abery001@umn.edu) and Dr. Renáta Tichá (tich0018@umn.edu) at the University of Minnesota’s Institute on Community Integration.