Overview

Purpose
Measure daily decision making of an individual with IDD
Respondents
  • Family Member
  • Person with a Disability
  • Caregiver
Administration Method
Interview
Administration Mode
In-person
Item Count
15
Population
Intellectual and Developmental Disability

Instrument Citation(s)

Menne, H. L., & Whitlatch, C. J. (2007). Decision-making involvement of individuals with dementia. The
Gerontologist, 47(6), 810-819.

Menne, H.L., Tucke, S.S., Whitlatch, C.J., & Feinberg, L.F. (2008). Decision-Making Involvement Scale for
individuals with dementia and family caregivers. American Journal of Alzheimer’s Disease &
Other Dementias, 23(1), 23-29.

Menne, H.L, Judge, K.S., & Whitlatch, C.J. (2010). Predictors of quality of life for individuals with
dementia: Implications for intervention. Dementia, 8(4), 543-560.

Feinberg, L.F., Whitlatch, C.J., Tucke, S. (2000). Making Hard Choices: Respecting Both Voices. Final
report submitted to The Robert Wood Johnson Foundation; 2000.

Instrument Domains

DomainNumber of Items
Choice and Control15
Personal freedoms and dignity of risk15
Choice of services and supports0
Personal choices and goals0
Self-direction0
Caregiver Support0
Access to resources0
Family caregiver/natural support involvement0
Family caregiver/natural support wellbeing0
Training and skill-building0
Community Inclusion0
Employment0
Meaningful activity0
Resources and settings to facilitate inclusion0
Social connectedness and relationships0
Transportation0
Consumer Leadership in System Development0
Evidence of meaningful caregiver involvement0
Evidence of meaningful consumer involvement0
System supports meaningful consumer involvement0
Equity0
Availability0
Equitable access and resource allocation0
Transparency and consistency0
Fluctuation of Need0
Holistic Health and Functioning0
Health promotion and prevention0
Individual health and functioning0
Human and Legal Rights0
Freedom from abuse and neglect0
Informed decision-making0
Optimizing the preservation of legal and human rights0
Privacy0
Supporting individuals in exercising their human and legal rights0
Level of Caregiver Well-Being0
Person-Centered Planning and Coordination0
Assessment0
Coordination0
Person-centered planning0
Service Delivery and Effectiveness0
Delivery0
Person's needs met and goals realized0
System Performance and Accountability0
Data management and use0
Evidence-based practice0
Financing and service delivery structures0
Workforce0
Adequately compensated with benefits0
Culturally competent0
Demonstrated competencies when appropriate0
Person-centered approach to services0
Safety of and respect for the worker0
Staff Turnover0
Sufficient workforce numbers dispersion and availability0
Workforce engagement and participation0

Psychometric Citation

  • Menne, H.L., Tucke, S.S., Whitlatch, C.J., & Feinberg, L.F. (2008). Decision-Making Involvement Scale for
    individuals with dementia and family caregivers. American Journal of Alzheimer’s Disease &
    Other Dementias, 23(1), 23-29.

    Type of Publication
    Peer review
    Instrument Language
    English
    Sample: Age (Mean and Range)

    61 years (SD = 13.87) and 76 years (SD = 9.23)

    Sample: Age Group

    18-64 Years; 65+years

    Sample: Countries/State

    Multiple States

    Sample: Disability Type

    Age Related Disability

    Sample: Gender (%male)

    21

    Sample: Race/Ethnicity (%)

    Caucasian (63% vs 37% African American)

    Sample: Sampling Strategy

    Convenience Sample

    Sample: Size

    217

    Reliability: Internal Consistency

    Cronbach α of 0.92

    Study design
    Cross-Sectional