Participant Experience Survey Home- and Community-Based Services Experience Survey (PES-HCBS)

Overview

Purpose
Assess quality of services and outcomes across HCBS populations
Respondents
  • Proxy
  • Person with a Disability
Administration Method
Interview
Administration Mode
In-person
Developer
MEDSTAT
Item Count
116
Populations
  • Intellectual and Developmental Disability
  • Mental Health Challenges
  • Traumatic Brain Injury
  • Age Related Disability
  • Physical Disability
Coverage Area
Unclear if these are the same coverage area for each survey

Instrument Citation(s)

Center for Medication, CHIP and Survey & Certification (CMCSC). (2012). The Home and Community-
Based Service (HCBS) Experience Survey Part A justification and supporting statement. https://www.ncoa.org/wp-content/uploads/508Supporting-Statement-Part-A-HCBS-11-Mar-2012.pdf PDF

Center for Medication, CHIP and Survey & Certification (CMCSC). (2012). The Home and Community-
Based Service (HCBS) Experience Survey: Attachment B data collection instruments.
https://ncoa.reingolddev.com/wp-content/uploads/508Attachment-B-Data-Collection-Instruments-12-Mar-12.pdf PDF

Instrument Domains

DomainNumber of Items
Choice and Control14
Choice of services and supports2
Personal choices and goals3
Personal freedoms and dignity of risk5
Self-direction6
Community Inclusion21
Employment13
Meaningful activity4
Resources and settings to facilitate inclusion1
Social connectedness and relationships2
Transportation5
Equity2
Equitable access and resource allocation2
Availability0
Transparency and consistency0
Holistic Health and Functioning3
Individual health and functioning3
Health promotion and prevention0
Human and Legal Rights10
Freedom from abuse and neglect4
Informed decision-making2
Privacy1
Supporting individuals in exercising their human and legal rights3
Optimizing the preservation of legal and human rights0
Person-Centered Planning and Coordination11
Assessment9
Person-centered planning2
Coordination0
Service Delivery and Effectiveness21
Delivery20
Person's needs met and goals realized9
Workforce30
Demonstrated competencies when appropriate1
Person-centered approach to services24
Sufficient workforce numbers dispersion and availability5
Adequately compensated with benefits0
Culturally competent0
Safety of and respect for the worker0
Staff Turnover0
Workforce engagement and participation0
Caregiver Support0
Access to resources0
Family caregiver/natural support involvement0
Family caregiver/natural support wellbeing0
Training and skill-building0
Consumer Leadership in System Development0
Evidence of meaningful caregiver involvement0
Evidence of meaningful consumer involvement0
System supports meaningful consumer involvement0
Fluctuation of Need0
Level of Caregiver Well-Being0
System Performance and Accountability0
Data management and use0
Evidence-based practice0
Financing and service delivery structures0