Consumer Leadership in System Development: Evidence of meaningful caregiver involvement

InstrumentsNumber of Items
AACP Rose-Recovery Oriented Services Evaluation3
CQL Basic Assurances3
Minnesota Elderly Waiver Consumer Experience Survey (MNCES)6
CAHPS Home and Community Based Services (HCBS) Survey EoC0
Cash and Counseling Demonstration Baseline Instrument0
CQL Personal Outcome Measures (POM)0
Money Follows the Person (MFP) Quality of Life Survey0
Mental Health Statistics Improvement Program (MHSIP) Adult Consumer Survey0
National Core Indicators Adult Consumer Survey (NCI ACS)0
National Core Indicators Aging and Disabilities (NCI AD)0
Personal Experience Outcomes Integrated Interview and Evaluation System (PEONIES)0
Participant Experience Surveys Elderly and Disabled (PES-ED)0
The Performance Outcome Measurement Project (POMP 5): Caregiver Services Survey Instrument0
Agreement with Recovery Attitudes Scale0
American Institutes for Research Self-Determination Assessment0
Assessment of Quality of Life (AQoL)0
Assistance with Caregiving0
Attitudes Towards Treatment0
Australian Community Participation Questionnaire0
Burden Scale for Family Caregivers, Long Form (BSFC)0
Burden Scale for Family Caregivers, Short Form (BSFC)0
CAN - Camberwell Assessment of Need, Revised0
Canadian Survey on Disability (CSD)0
Caregiver Strain Index (CSI)0
Caregiving Appraisal Scale (CAS)0
CGUS: Caregiving in the U.S. 20150
Client Assessment Inventory (CAI)0
CLMDP: SAMHSA’s NOMs Client-Level Measures for Discretionary Programs Providing0
Community Integration Measure (CIM)0
Community Integration Questionnaire - Revised (CIQ-R)0
Community Participation Indicators (CPI)0
Community Service Attitudes Inventory0
Consumer Recovery Outcomes System (CROS 3.0) - only use consumer version0
Coordinated Assessement System0
Craig Handicap Assessment and Reporting Technique (CHART)0
Craig Hospital Inventory of Environmental Factors (CHIEF)0
Decision Making Involvement Scale0
Disability Rating Scale (DRS)0
Empowering Arizona’s Individuals with Developmental Disabilities Consumer to Consumer Survey (EAZI)0
Empowerment Affirmation Scale (ES - Corrigan)0
Evaluating Social Inclusion Questionnaire0
Experience of Care and Health Outcomes Survey, CAHPS Version 3.0 (ECHO)0
Family and Individual Needs for Disability Supports (FINDS) Survey0
Glasgow Outcome Scale-Extended (GOS-E)0
Hopkins Symptom Checklist - 25 item version (HSC)0
Illness Management and Recovery (IMR) Scales - Clinician rating0
Illness Management and Recovery (IMR) Scales - Consumer Self-rating0
Lehman Quality of Life Interview (QLI)0
Maryland Assessment of Recovery in People with Serious Mental Illness0
Mayo-Portland Adaptability Inventory-4 (MPAI-4)0
Mental Health Statistics Improvement Program (MHSIP) Family Survey0
Mental Health Statistics Improvement Program (MHSIP) Youth Consumer Survey0
Minnesota Department of Human Services Resident Quality of Life Interview 20150
Minnesota Self-Determination Scales Decision-Making Preference Scale0
Minnesota Self-Determination Scales Exercise of Control Scale0
Minnesota Self-Determination Scales Exercise of Control Scale (Staff version)0
Minnesota Self-Determination Scales Importance of Control Scale0
Minnesota Self-Determination Scales Self-Determination Environment Scale0
Minnesota Self-Determination Scales Self-Determination Environment Scale (Staff version)0
MN LTSS Improvement Tool Form 7611 D (MN-LTSSIT-D)0
MN LTSS Improvement Tool Form 7611A (MN-LTSSIT-A)0
MN LTSS Improvement Tool Form 7611B (MN-LTSSIT-B)0
MN LTSS Improvement Tool Form 7611C (MN-LTSSIT-C)0
MN Service Provider (MNSP)0
MNSP-CMEvalCSSP0
MNSP-CMEvalProviders0
MNSP-PersonEvalCM0
MNSP-PersonEvalCSSP0
MNSP-PersonEvalProviders0
MOS Social Support Survey0
National Core Indicators (NCI) Adult Family Survey (NCI AFS)0
National Core Indicators (NCI) Child Family Survey (NCI CFS)0
National Core Indicators (NCI) Family Guardian Survey (NCI FGS)0
National Core Indicators (NCI) Staff Stability Survey0
National Health and Aging Trends Study Round 5 (NHATS) - Participation Module0
National Long Term Care Survey Community Questionnaire, 2004 (NLTCS)0
National Survey of Older Americans Act Participants (NSOAAP): Additional Service List Module0
National Survey of Older Americans Act Participants (NSOAAP): DEMOGRAPHIC INTAKE Module0
National Survey of Older Americans Act Participants (NSOAAP): Individual Service Modules0
National Survey of Older Americans Act Participants (NSOAAP): PHYSICAL, SOCIAL, AND EMOTIONAL WELL-BEING Module0
NSOC: National Study of Caregiving.0
NYPSS - New York Traumatic Brain Injury Waiver Program Participant Satisfaction Survey0
Ohio Department of Aging Resident Satisfaction Survey (OH-RCF)0
Older People’s Quality of Life Questionnaire (OPQOL-35)0
ORIES - Oregon HCBS Individual Experience Survey, 20150
PART-E - Participation Assessment with Recombined Tools-Enfranchisement0
PART-O - Participation Assessment with Recombined Tools-Objective0
Participant Experience Survey Home- and Community-Based Services Experience Survey (PES-HCBS)0
Participant Experience Survey Home- and Community-Based Services Experience Survey (PES-HCBS) Alternate Version0
Participant Experience Survey Mental Retardation/Developmental Disabilities Version (PES-MRDD)0
Pearlin Coping Mastery Scale (PCMS)0
Peer Outcomes Protocol - Program satisfaction module and well-being module0
Perceived Autonomy Support - The Mental Health Climate Questionnaire (PAS-MHCQ)0
Perceived Competence for Recovery Scale (PCRS)0
Perceived Quality of Life Scale (PQoL)0
Person-Centered Practices in Assisted Living (PC-PAL), Resident and Staff Forms0
Personal Empowerment0
Personal Life Quality Protocol (PLQ)0
Personal Wellbeing Index-Intellectual Disability0
Preferences for Everyday Living Inventory-Nursing Home0
PROMIS-ES - PROMIS Item Bank v2.0, Emotional Support0
PROMIS-GHS - PROMIS Item Bank v1.0/1.1, Global Health Scale0
PROMIS-SPDSA - PROMIS Item Bank v1.0, Satisfaction with Participation in Discretionary Social Activities0
PROMIS-SSRA - PROMIS Item Bank v2.0, Satisfaction with Social Roles and Activities0
Quality of Life (Kane, 2004)0
Quality of Life in Alzheimer's Disease Scale0
Quality of Life Questionnaire (QOL - Schalock)0
Quality of Life Scale, Flanagan (QOLS)0
Recovery Assessment Scale (RAS)0
Recovery Oriented Practices Index (ROPI)0
Recovery Oriented System Indicators (ROSI)0
Recovery Promotion Fidelity Scale (RPFS)0
Recovery Self-Assessment Scale (RSA) Person in Recovery Version0
Ridgway Recovery-Enhancing Environment Measure0
Rochester Recovery Inventory0
SCSPWD - Survey for Caregivers Supporting a Person with a Disability Outside of the Disability Support Service System.0
Sense of Community Index 2 (SCI-2)0
Social Acceptance Scale (SAS)0
Social and Community Opportunities Profile0
Social Relations Scale (Quality of Life Interview, Lehman) (QOLI-SRS)0
Staff Relationship Scale (SRS)0
Staff Survey of Social Inclusion0
Stages of Recovery Instrument (STORI)0
Tailored Caregiver Assessment, Personal Family Caregiver Survey (TCARE)0
Temple University Community Participation Measure (TUCPM)0
The Arc’s Self-Determination Scale, Adult Version (ASDS)0
The Empowerment Scale, Rogers (ESR) - AKA Making Decisions Empowerment Scale0
The Family Quality of Life Scale (FQOL)0
The Performance Outcome Measurement Project (POMP 5): Additional Services Received Module0
The Performance Outcome Measurement Project (POMP 5): Case Management Survey Instrument0
The Performance Outcome Measurement Project (POMP 5): Demographics Module0
The Performance Outcome Measurement Project (POMP 5): Social and Emotional Well-Being Module0
The Performance Outcome Measurement Project (POMP 5): Transportation Survey Instrument0
TRAIL Leisure Assessment Battery0
UCLA Loneliness Scale (UCLA LS)0
Well-Being Scale0
World Health Organization Quality of Life BREF (WHOQOL-BREF)0
World Health Organization Quality of Life OLD (WHOQOL-OLD)0
Youth Quality of Life Instrument - Short Form (YQOL-SF)0
Youth Services Survey (YSS)0
Zarit Burden Interview (ZBI)0