Participant Experience Survey Mental Retardation/Developmental Disabilities Version (PES-MRDD)
Overview
- Purpose
- State quality assurance
- Respondents
- Proxy
- Person with a Disability
- Administration Method
- Interview
- Administration Mode
- In-person
- Developer
- MEDSTAT
- Item Count
- 83
- Population
- Intellectual and Developmental Disability
- Coverage Area
- Unclear if these are the same coverage area for each survey
Instrument Citation(s)
The MEDSTAT Group, Inc. (2003). Participant Experience Survey MR/DD Version. http://nasuad.org/hcbs/article/participant-experience-survey-pes-tools
The MEDSTAT Group, Inc. (2003). Participant Experience Survey MR/DD Version Users’ Guide. http://nasuad.org/hcbs/article/participant-experience-survey-pes-tools
Instrument Domains
| Domain | Number of Items |
|---|---|
| Choice and Control | 21 |
| Choice of services and supports | 2 |
| Personal choices and goals | 11 |
| Personal freedoms and dignity of risk | 8 |
| Self-direction | 3 |
| Community Inclusion | 13 |
| Employment | 3 |
| Meaningful activity | 8 |
| Social connectedness and relationships | 3 |
| Transportation | 1 |
| Resources and settings to facilitate inclusion | 0 |
| Holistic Health and Functioning | 2 |
| Individual health and functioning | 2 |
| Health promotion and prevention | 0 |
| Human and Legal Rights | 9 |
| Freedom from abuse and neglect | 3 |
| Informed decision-making | 1 |
| Optimizing the preservation of legal and human rights | 3 |
| Privacy | 3 |
| Supporting individuals in exercising their human and legal rights | 0 |
| Person-Centered Planning and Coordination | 13 |
| Assessment | 13 |
| Coordination | 0 |
| Person-centered planning | 0 |
| Service Delivery and Effectiveness | 15 |
| Delivery | 14 |
| Person's needs met and goals realized | 13 |
| Workforce | 22 |
| Demonstrated competencies when appropriate | 1 |
| Person-centered approach to services | 10 |
| Sufficient workforce numbers dispersion and availability | 11 |
| Adequately compensated with benefits | 0 |
| Culturally competent | 0 |
| Safety of and respect for the worker | 0 |
| Staff Turnover | 0 |
| Workforce engagement and participation | 0 |
| Caregiver Support | 0 |
| Access to resources | 0 |
| Family caregiver/natural support involvement | 0 |
| Family caregiver/natural support wellbeing | 0 |
| Training and skill-building | 0 |
| Consumer Leadership in System Development | 0 |
| Evidence of meaningful caregiver involvement | 0 |
| Evidence of meaningful consumer involvement | 0 |
| System supports meaningful consumer involvement | 0 |
| Equity | 0 |
| Availability | 0 |
| Equitable access and resource allocation | 0 |
| Transparency and consistency | 0 |
| Fluctuation of Need | 0 |
| Level of Caregiver Well-Being | 0 |
| System Performance and Accountability | 0 |
| Data management and use | 0 |
| Evidence-based practice | 0 |
| Financing and service delivery structures | 0 |