SCSPWD - Survey for Caregivers Supporting a Person with a Disability Outside of the Disability Support Service System.
Overview
- Purpose
- Determine how informal caregivers of non-elderly people with disabilities and chronic health conditions provide care with minimal or no support from the formal disability system
- Respondent
- Caregiver
- Administration Method
- Survey
- Administration Mode
- Web-based
- Developer
- https://aspe.hhs.gov/basic-report/survey-caregivers-supporting-person-disability-outside-disability-support-service-system
- Item Count
- 76
- Population
- Caregiver
Instrument Citation(s)
Available at: https://aspe.hhs.gov/basic-report/survey-caregivers-supporting-person-disability-outside-disability-support-service-system
Instrument Domains
| Domain | Number of Items |
|---|---|
| Caregiver Support | 14 |
| Access to resources | 1 |
| Family caregiver/natural support involvement | 8 |
| Family caregiver/natural support wellbeing | 5 |
| Training and skill-building | 0 |
| Community Inclusion | 1 |
| Meaningful activity | 1 |
| Employment | 0 |
| Resources and settings to facilitate inclusion | 0 |
| Social connectedness and relationships | 0 |
| Transportation | 0 |
| Equity | 1 |
| Equitable access and resource allocation | 1 |
| Availability | 0 |
| Transparency and consistency | 0 |
| Level of Caregiver Well-Being | 15 |
| Person-Centered Planning and Coordination | 1 |
| Assessment | 1 |
| Coordination | 0 |
| Person-centered planning | 0 |
| Choice and Control | 0 |
| Choice of services and supports | 0 |
| Personal choices and goals | 0 |
| Personal freedoms and dignity of risk | 0 |
| Self-direction | 0 |
| Consumer Leadership in System Development | 0 |
| Evidence of meaningful caregiver involvement | 0 |
| Evidence of meaningful consumer involvement | 0 |
| System supports meaningful consumer involvement | 0 |
| Fluctuation of Need | 0 |
| Holistic Health and Functioning | 0 |
| Health promotion and prevention | 0 |
| Individual health and functioning | 0 |
| Human and Legal Rights | 0 |
| Freedom from abuse and neglect | 0 |
| Informed decision-making | 0 |
| Optimizing the preservation of legal and human rights | 0 |
| Privacy | 0 |
| Supporting individuals in exercising their human and legal rights | 0 |
| Service Delivery and Effectiveness | 0 |
| Delivery | 0 |
| Person's needs met and goals realized | 0 |
| System Performance and Accountability | 0 |
| Data management and use | 0 |
| Evidence-based practice | 0 |
| Financing and service delivery structures | 0 |
| Workforce | 0 |
| Adequately compensated with benefits | 0 |
| Culturally competent | 0 |
| Demonstrated competencies when appropriate | 0 |
| Person-centered approach to services | 0 |
| Safety of and respect for the worker | 0 |
| Staff Turnover | 0 |
| Sufficient workforce numbers dispersion and availability | 0 |
| Workforce engagement and participation | 0 |